EHDI – what it is, isn’t & could be / should be

In 2011 – i posted examining what EHDI stood for and how it works

Yep 5 years ago we began to examine the unexamined

EHDI stand for
E = Early – and they truly mean Early – the system tests fresh out of the womb even though the test sometimes gives false positives and false negatives and there is ABSOLUTELY NO REASON parents need to know on the very BIRTH day of their child if they are Deaf or not.  (the Joint Committee on Newborn Hearing – which pushed for EHDI’s creation, EHDI, the Center for Disease Control and the National Institute for Health also push for genetic screening – yep get them before they are even born)

H = HEARing – because to Hear is divine according to all the system folks and to be Deaf is WRONG in their world view

D = Detection – ie testing.  testing prenatally, testing at birth, testing with sedation at 3 mo., testing again and again and on and on

I = Intervention – which currently means prioritizing audition and spoken English and discouraging ASL.  Sure they might say they tolerate ASL or “its the parent’s choice” but read all the literature, attend all the conferences, look over all the pamphlets and you will see the push for all things oral / aural.

We have done this dance before folks – Back when the ICED Milan 1880 congress declared Oralism to be superior to natural sign language.

ICED Vancouver 2010 renounced and recognized the damage of that faulty and inhumane declaration but apparently EHDI has not gotten the memo.

EHDI ? p durr

“EHDI ? ” by P. Durr (using Rourkism style)

What should EHDI stand for ?
E = Early – not right at birth but by the third well baby visit – sure
H = Healthy – make sure they are getting language and contact and L O V E
D = Deaf – cuz it really is ok to be Deaf today in 2016
I = Identity – yes EHDI should tell parents, relatives, babies, specialists and more that it is good to be Deaf and being Deaf is a beautiful part of our bio-diversity

Yes EHDI should honor the UN Convention on the Rights of Persons with Disabilities that says no country should deny a Deaf child natural sign language and Deaf culture and countries should have Deaf folks be part of the decision making process on matters that impact Deaf people.

Yes EHDI should train all the various SYSTEMS (hospitals, doctor offices, audiology labs, speech pathologists, schools etc) that when a baby or toddler is found to be Deaf – a banner should be put up in congratulations and a basket of goodies delivered – Teddy Bears to slide signing hands through, DVDs in ASL, Deaf positive onies, De’VIA posters fingerspelling out L O V E, De’VIA coloring books and more.  Parents should be allowed to meet Deaf adults and insurance should over ASL classes and mentors and more.

Eradication of Language deprivation should be the goal instead of trying to annihilate being Deaf.  It is not a plague nor is it polio.

So i hope everyone will make a wee video of #whyisign – to learn more go to https://www.youtube.com/watch?v=autI7jMiAV0 (#whyisign campaign is March 13-15 to coincide with the EHDI conference in San Diego).

And the folks who keep shelling out big bucks to present and meet and greet at EHDI – please consider doing some real direct action because when we did in St Louis in 2012 we saw how EHDI really operates and who is in charge and why.

Since that time – numerous studies have come out about how ASL does not harm speech development and how denying ASL to Deaf babies does cause harm.  We also seen more and more proof of how bilingualism is good for Deaf babies and recommended by the American Association of Pediatrics. There is more much more but Audism Free America’s original 5 Demands of EHDI still remain today (see the 2012 demands below – EHDI has made some improvements as a result of AFA’s push but there is much more that needs to be done).

Five years have passed since i blogged about the various connect the dots we were discovering about how the EHDI system works and does not work and still the system favors:
Dr. Karl White’s NCHAM which does NOT post information on CI recalls or articles on harms or concerns and is very biased.
Pushes the Hands and Voices Guide by Your Side without Deaf input and expertise.
Stigmatizes being Deaf and makes parents feel they are negligent if they do not implant ASAP (and sometimes that is as early as 5 month old even though the FDA does not recommend it until 12 mo)
EHDI is still operating as if it is a crusade against a plague and not as a system that desires to ensure all Deaf children have access to a fully natural and accessible language and identity along with English and US culture.
Ohhh there is money to be had in them thar ears – there is much much much more for us to discover and understand just how embedded the “hearing” industry – the auditory industrial complex – is with EHDI

so it is my hope, plea, and wish that Deaf folks and allies follow the ways of MLK Jr and Gandhi and even the peaceful protestors that shut down the Donald Trump rally in Chicago.  EHDI currently promotes language bigotry and cultural genocide on many levels.  I do not want to see 5 more years go by of our people working “in the system” to augment crumbs of change.  5 Years in the lives of a Deaf babies brain are really really really IMPORTANT.

Those who will not divest are called upon to take some type of peaceful direct action otherwise you are really contributing to the prolonged ERA of Language Deprivation & Bigotry and that is NOT NOT NOT cool.

“Unless someone like you cares a whole awful lot,
Nothing is going to get better. It’s not.”
The Lorax by Dr. Suess

2011 post series examining EHDI.  i started with the I
EHDI – What does the I really mean?
https://handeyes.wordpress.com/2011/12/01/ehdi-what-does-the-i-really-mean/
The D in Detection of EHDI
https://handeyes.wordpress.com/2011/12/05/the-d-in-detection-of-ehdi/
EHDI – Let’s take a look at the H – Shall we? (the E is covered in this entry too)
https://handeyes.wordpress.com/2011/12/08/ehdi-lets-look-at-the-h-shall-we/

AFA’s 2012 Five Demands – in ASL https://www.youtube.com/watch?v=UZ8aZD7YbRo

1. Equitable funding .AFA calls upon EHDI, CDC, NIH, and US Dept of Education to address the historical and contemporary inequality of funding by increasing funds for bilingual (ASL and English) materials, early educational programs, Deaf mentoring programs, and services to parents. Equitable funding should be transparent.

2. Early Healthy Deaf Identification.
AFA calls upon EHDI to shift its approach to Deaf infants and their families from a pathological/medical bias to a positive/culturally-additive model in identification. To ensure this, parents need to be informed at the time of identification that American Sign Language is a linguistic human right for a Deaf child and Deaf/ASL early service providers are trained to work with them. In addition, EHDI should implement the labeling/way of thinking that was published in EHD’s 2011 Resource book in the chapter on Partnerships with the Deaf Community.

3. Stake Holders in Leadership positions.
AFA calls upon EHDI to hire Deaf people who use and support ASL/Deaf Culture in leadership roles at national and state levels.

4. Full Disclosure.
Audiologists should be required to explain the four international documents and their positions on the language and cultural rights of Deaf people. Also, they need to explain the recalls (both voluntary and involuntary) and risks associated with cochlear implants and Audio-verbal Therapy (AVT) programs.

5. Confidential Information and Genetic research.
AFA calls upon EHDI to guarantee that information about Deaf children and their families will not be used for collecting genetic information beyond consults with the families. EHDI will not support financially nor in terms of information sharing any research related to genetic engineering.

sharing from carol hirsch

 

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Advanced Bionics Put Profit Over People q

Advanced Bionics headquarters against a blue sky with black lettered spray painted signs on white poster boards hanging in front on a fence spelling out the words (AB) HARMS DEAF CHILDREN July 2013

Advanced Bionics headquarters against a blue sky with black lettered spray painted signs on white poster boards hanging in front on a fence spelling out the words (AB) HARMS DEAF CHILDREN July 2013

ADVANCED BIONICS keeps shocking us.

Advanced Bionics Put Profit Over People q

We have been sharing info on the dangers of cochlear implants for a while here at the People of the Eye place simply because no one else was.

It wasn’t anything i wanted to pursue or even think about.  But the truth kept on a calling and there are more truths to be told.

In addition to Advanced Bionics being fined by the FDA to the tune of $1.1 million dollars and having numerous recalls and having caused alot of deaths from meningitis infections post implantation – it was sued by a KY family who’s daughter got shocked by her Advanced Bionics cochlear implant four years AFTER it was implanted due to a moisture leak.  A Ky jury awarded the family over $7 million dollars.

[see A Tool That Shocks – Advanced Bionics & AG Bell https://handeyes.wordpress.com/2013/05/23/a-tool-that-shocks-the-holy-grail/]

The latest is more facts are coming out about how Advanced Bionics engaged in corporate deviance – knowingly allowing their faulty devices to remain out on the market.  This is a HUGE problem folks cuz these devices dont just sit on shelves, they don’t just travel in people’s pockets – they get implanted into the brain – yes the electrodes make contact with the brain and moisture leak where there is brain fluid is NOT NOT NOT NOT cool.

Deceit is not sweet. – So see the latest news story from the Today show of NBC about a family that is VERY upset that their daughter got a faulty implant.  Language delay is not cool.  Corporate deviance is derelict.  Profit from false prophecies unjust.  http://www.today.com/health/defective-cochlear-implants-shocked-kids-even-though-company-had-been-2D79371793

Note the quote from the doctor in the news:

Dr. Gadre says he’s angry that small children were forced to undergo multiple, traumatic surgeries.

“I think those human beings made a terrible decision,” he said. “When you start putting profits before people, because that’s the only way I can interpret this, if you start putting profits before people it never comes to a good end. There’s no way that that could ever come to a good end.”

Advanced Bionics putting profit over WEE people is totally unconscionable.  AG Bell Association being associated (ie in bed with Advanced Bionics) – accepting HUGE amounts of money from Advanced Bionics and featuring them as their major conference sponsors is WRONG.

With a capital A for Audism and C for capitalism.

NOT COOL.

Very thankful that Audism Free America held a peaceful demonstration at Advanced Bionics in July 2013 and spelled out the truth to help make the invisible visible.

group of protesters in front of Advanced Bionics hold up white poster boards with black spraypainted letters spelling out (AB) Harms Deaf Children in the scorching heat of LA, CA July 2013

group of protesters in front of Advanced Bionics hold up white poster boards with black spray painted letters spelling out (AB) Harms Deaf Children in the scorching heat of LA, CA July 2013

Audism Free America started a petition calling upon the Food and Drug Administration (FDA) to initiate and impartial and independent investigation into the safety of cochlear implants especially in children.  The petition has over 1500 signatures at the PETITION ONLINE site – Please feel free to sign and circulate.  Many prominent folks have signed the petition such as Drs. Ben Bahan and Harlan Lane.  Add your John Hancock so that we get ANSWERS. http://www.petitiononline.com/AFA62509/petition.html

AGBAD & JTC k i s s i n g… first comes Oralism then comes Audism…

I Will Never Forget mansfield

I Will Never Forget by Ellen Mansfield

So as hopefully you already know – the AG Bell Association will be having their Listening & Spoken Language (LSL) conference in Los Angeles this summer.  July 18-20, 2013.  and hopefully you already know that Audism Free America (AFA) and Ca. Deaf community members will be having some rallies (see vlog at bottom of this entry)

Also in LA is the infamous John Tracy Clinic, which was established by the wife of famous actor (Spencer Tracy) because they had a Deaf son (John Tracy) and she wanted him to speak.  He was raised orally and even after he became blind from Usher’s Syndrome later in life still no one signed with him.  Family members would just listen to him talk and then they would do tactile outlining of letters into the palm of his hand or if more lengthy info. on his back.

The John Tracy Clinic is famous because it brought English word kits directly into the homes of families with Deaf children.  Parents desperate to know what to do with their Deaf child would get these packets to label various items in their home CHAIR DOOR STAIRS …. a visual system to get words into the minds of the wee people of the HandEyes.

The reason why it is also famous is because it adheres to the exclusionary dogma of Oral / Aural ONLY – ie the wee things are NOT allowed to sign if they are reared on the John Tracy Clinic method which in turn is affiliated with the AG Bell method.  The John Tracy Clinic is not only in the business of making Deaf children behave as much like Hearing children as possible, they also have a master’s program.  the online program
• Requires current employment as a teacher in a “Center of Excellence” as outlined in the Alexander Graham Bell Association’s “Components of a Quality Auditory-Oral Program”1

this AG Bell Components of a Quality Auditory-Oral Program that the John Tracy Clinic adheres to promotes the belief that to hear and/or behave as a hearing person is superior to being Deaf (ie AUDISM) and follows Auditory Verbal Therapy (AVT), which denies the visual acuity of Deaf children via lipreading or gesturing and/or signing.

Don’t believe me well here are a few quotes from that AG Bell Program:

AG BELL Components: As we prepare students who have a hearing disability for the real world, it isimperative that they develop the oral communication skills that will enable them to compete.

Resistance by David Call

Resistance by David Call

 

FACT: this is false folks – i know plenty of Deaf folks who do not communicate orally that are able to compete in the real world.  Its not an imperative for life – its just an imperative for their industry and their ideology.
AG BELL Components: This is particularly important since 90-95% of alI students with a hearing disability are born to hearing parents and families who communicate orally.
FACT: Aren’t they cute in how they make it seem like 90-95% of the families do not sign when in FACT many Hearing families with Deaf children DO SIGN.
AG BELL Components: Public School Caucus is dedicated to providing auditory/oral programs and options for students with hearing disabilities. The development of auditory/skills increases students’ ability to learn and to meet their maximum academic potential.
FACT: The majority of Deaf children are implanted and being raised orally in oral Deaf schools and/or the mainstream and we have NOT seen a marked improvement in Deaf children’s literacy rate.  Auditory/oral programs continue to show mixed results while Deaf children who were given a fully accessible natural sign language and English at a young age generally show strong literacy and cognitive skills.
AG BELL Components: All program components must support that oral philosophy. This is based on the following beliefs:
The role of education is to prepare students to live in the hearing world by developing oral
communication skills.
All persons involved in the student’s program must be committed to the auditory/oral
philosophy. This includes:
-the parents, immediate family, and extended family,
-the teachers of the hearing impaired, support staff, and administrators,
-the general education staff and general education administrators, and
-the board of education and the community.
‘ All programs and methods used must be designed, implemented, and maximized to develop
the student’s ability to communicate orally.
All methods/modalities must support and not supplant oral communication/programming.
Examples of supportive systems Would include audition, speechreading, and the printed
symbol. Methods that supplant would include Signed English, ASL, etc
FACT: See how EVERYONE must be oral / aural only – even the extended family members.  Imagine the effort that goes into trying to deny the child any exposure to ASL.  I know of one young person that told me their parents wouldn’t even let them have up Deaf centered posters in their room for fear that ASL would soon follow.
Note the last line of how ASL is maligned as a supplanter. 
 AG BEll Component under the Physical Facilities section:

A quality auditory/oral program is sensitive to the physical facilities in which the program is housed. It
is imperative that students who utilize auditory/oral communication be in a separate facility from those
students using sign language.
FACT: Never the twain shall meet, eh?  Keep them far far as in physically far apart.  Oy the jealous mistress.
There is more (you can see an older entry examining other parts of AG Bell Doctrine) but its UGH and you get the idea that 1. AG Bell your fanaticism NOT COOL and 2. JTC your training new teachers in this dogmatic doctrine NOT COOL.

AGB & JTC k i s s i n g… first comes Oralism then comes Audism…

MaishaAnd if you are already thinking but the ability to speak is such a Godsend or its only for their own good or grrr that Durr with all her facts – check out a survivor of John Tracy Clinic and her beautiful truths.  She even included George Veditz and i was like WOW!

http://wheresmaisha.blogspot.com/2012/01/lies-agbell-told-my-parents.html

LA is starting to look like the Bermuda Triangle of Oralism now aint it?

No wonder AG Bell set its sights there.

This is why we STAND folks.

“Let us join together as one to protest these educators who would fix our destiny without consulting us, without hearing us. Here in the greatest republic of the Old World, the delegates from that in the New ask all present to join together to affirm a new declaration of human rights, the right of the deaf to life, liberty the pursuit of happiness, and the education of their children on a plan they accept. Let us declare to the entire world that the deaf will not be crucified on the cross of a single method.” James L. Smith 

1 (from http://www.jtc.org/graduate-students/online-masters-degree-program)

AFA vlog about the rallies in LA during the AG Bell LSL Symposium

CI Online FRC and McCaskill – Wow Weeeee

heye all

just a truth seeking before the New Year rolls in since the doomsday 12 21 2012 b.s. has been busted and the fiscal cliff is still looming and cuz folks r still going rampant and killing innocent folks left and right (even on Christmas eve – see the tragic shooting of firemen in Webster, NY ) while the NRA still justifies the producing marketing and disseminating of weapons of mass destruction

Item 1: CI Online goes Over the Line

CI Online – the blog run by two pro pro pro CI folks ran an entry attacking Toys R Us and the American Society for Deaf Children (ASDC).  Never mind the fact that Toys R Us has been CI friendly via having kids with CI appear as models in their catalogs etc – the folks at Cochlear Implant Online reaffirm that Oralism is a jealous mistress and they are furious over Toys R Us giving ASDC a wee grant.  Odd how they never complained about AG Bell having Cochlear Americas and Advanced Bionics as their Circle Alliance Partners accepting THOUSANDS of dollar$$$ from both companies while those companies were getting hit with fines from the FDA and the Dept of Justice for unethical dealings, fraud and faulty (spark) product.  Nope not a wee word of complaint was heard from CI Online but Toys R Us giving ASDC some support for all the good work ASDC does causes CI Online to insinuate and accuse.

http://cochlearimplantonline.com/site/concerns-about-toys-r-us/

I left a comment over there back when the entry crossed my path and ive given them a long time to finally approve it but since its been month and since other comments got approved after mine im gonna wager that they are not interested in publishing the truths so we will just do that here.

They start with this misrepresentation: “the existence of the technology that allows deaf children to hear almost like a normal hearing person.”  The data and the testimony from cochlear implant users (included Rush Limbaugh) state that CI do NOT allow Deaf folks to hear almost like a normal hearing person – nope they don’t so just lay off on the B.S. Rachel and Elizabeth, eh – otherwise ya look like u r selling snake oil.  Truth and nothing but it is what the parents deserve and need

Falsehoods #1 from CI Online’s letter to Toys R Us:

“incredible technology that enables children with hearing loss full access to sound.”

Fact:

CI does not provide FULL access to sound – just go see those pix of cats with CI on their foreheads trying to train them to identify when a violin is played or see Rush Limbaugh and every other CI user I know talk truthfully about what it does enable and what it DOES NOT.

Falsehood #2:

Rachel and Elizabeth state that the ASDC misleads people via this statement from ASDC’s website: “Research consistently demonstrates that fluency in sign language and English offers deaf children (including those with cochlear implants) and hard-of-hearing children optimal opportunities for social and academic success, and thus both should be part of their language-rich environment.”

Fact:

There is NOTHING misleading about that statement – it states a fact that research has shown that fluency in a fully natural and accessible Signed Language and English does offer Deaf (wee bit to big bit and with or without devices) kids optimal opportunities for social and academic success.

Falsehood #3:

“This statement is not based in fact, and promotes only one of the many ways that parents of children with hearing loss can choose for their children to communicate.”

Fact:

The statement is fact based and does NOT promote only ONE of the many ways ie they recognize ASL, English and technology so YO YOU, AG Bell, and CI co  ARE THE ONES PROMOTING ORAL/AURAL O-N-L-Y – ie AVT / LSL and Oral Only Optionless programs

Falsehood #4:

The Fourth paragraph which starts with the word: “Today, …” lists speaking and hearing, telephone, TV without CC, music, and mainstreaming.

Fact:

They do not mention that many Deaf people could speak and hear some before the advent of CI, that many folks with CI want and need CC and are even suing schools and colleges to provide them with CART and CC, that many can hear music but still not decipher the words, nor can they hold telephone conversations beyond family members or beyond them speaking primarily and the other person listening predominately.  As for mainstreaming – the literacy rate for Deaf children is still low despite the HUGE increase in mainstreaming and implantation.

Falsehood #5:

“The vast majority of children with hearing loss do not know or use sign language, contrary to what the American Society for Deaf Children argues.”

Fact:

ASDC does not argue that the vast majority of children KNOW sign language – they argue that they should have the RIGHT to know sign language – just as Hearing babies are gobbling up sign language.

Falsehood #6:

“Thus, the American Society for Deaf Children, with its promotion of only one mode of communication for children with hearing loss (sign language) is both out of line with the latest research as well as out of sync with the vast majority of children with hearing loss today.”

Fact:

Already established but since we are dealing with folks who have hearing loss and selective listening skills we will repeat with caps (ie louder) ASDC DOES NOT PROMOTE ONLY ONE MODE OF COMMUMICATION.

In fact it is CI Online – Rachel and Elizabeth who are OUT OF LINE and out of sync with the facts and the truth and that which is right, just, and good.  ‘Tis a pity, eh?

Why do the pro-CI anti-ASL fanatics always have to resort to lies, falsehoods, deceptions, extremism, and exclusivity.  OY!  so old, so old this jealous mistress of theirs.

Falsehood #7:

They go on to misrepresent by saying “There are many research studies that truly show success in children with hearing loss who learn the language through speaking and hearing with cochlear implants.”

Fact:

The studies they mention are comparing oral /aural only with total communication (sim-com speaking and signing incompletely at the same time NOT bilingual programs) and those studies are measuring speech and hearing NOT LANGUAGE.

Falsehood #8:

“While ASDC primarily supports children with hearing loss who communicate through sign language, the organization clearly shows animosity toward cochlear implants and listening and spoken language.”

Fact:

Im a little teapot hears my spot – can you hear that black kettle a roaring?  ASDC favors providing Deaf children with LANGUAGE RIGHTS – ASL and ENGLISH.  That is actually a good thing.  Bilingualism and multilingualism is generally desirable and beneficial.

In no way has ASDC demonstrated animosity towards CI and listening and spoken language.  They do acknowledge the benefits, usefulness, justness of ASL and in CI Online’s prejudicial eyes – that constitutes animosity.

Well well well – lets take a look at who is exhibited animosity – Rachel and Elizabeth are via their letter riddled with falsehoods and attacks to Toys R Us.  Oy – doing more than shaking me head over here.  Im also grinning a bit.  Why you ask?  Well, see the next FACT

Fact:

When ya all resort to false attacks and misrepresentation it shows how scared you are and shows how unjust you are.  AG Bell couldnt tolerate ASL being shown on TV one day in a wee seconds of a commercial so they wrote a letter to Pepsi crying (just ignore the fact that one of the actor has a CI and does do all that listening and speaking stuff but *gasp* he showed ASL and Deaf culture in a witty way – call out the Oral Aural ONLY police) to which Pepsi said – WHATEVER!

And Toys R Us gives ASDC a wee grant award and Cochlear Implant Online goes on the warpath.

Really – lets talk about animosity shall we?  and lets remember our history which AG Bell and others so much want us to forget and lets remember and REALIZE that the history is still being enacted EVERYDAY all over the US of A.  they making Tony Perkins look tame eh?  There has been a vicious campaign against ASL in America and AG Bell and co.  have been the primary proponents of it – ask yourself WHY?  Why would they go to such length to forbid ASL on the fingers of the wee things folks?  its an important question

Back to the b.s.

Falsehood #9:

Rachel and Elizabeth go on to try to malign ASDC some more by insinuating guilt by association via Audism Free America (AFA) “an organization that fights against cochlear implants and demands that all deaf children must learn sign language by holding protests at Alexander Graham Bell Association for the Deaf and Hard of Hearing’s headquarters, the Volta Bureau in Washington DC.”

Fact:

The Blue Scare (blue as in blue ribbon, blue tape and AFA is the anti-christ wow wee ya all need to get out more) Ya Hoo – yes CI Online is engaging in a wee bit of fear mongering aint they?

AFA ADVOCATES for ANSWERS.  Ever wonder why its so hard to get the FACTS re: CI safety, effectiveness, and reliability?  AFA has called for an impartial and independent investigation into CI safety and it has demanded that AG Bell STOP excluding ASL from the lives of Deaf children and their families.  AG Bell’s AVT / LSL programming promotes an exclusionary, extremist, and unjust doctrine of Oral / Aural Only and that is what AFA protests.

Free speech! ya hoo – AFAers have the right to assembly, press, petition, and speech and we use it well and AFA is made up of folks au naturale, folks who have CI, folks who had CI, folks who are native ASLers, native speakers, folks who are newbies, folks who are survivors of Oralism, and more.  Exercising our independence we be!  AmeriCANs

Falsehood #10:

” ASDC affiliate AFA also wrote a letter to Dr. John Niparko, one of the world’s leading cochlear implant surgeons, expressing hatred towards cochlear implants.”

Fact:

Fact is if you read the AFA letter to Dr. Niparko you will see an act of community accountability you can be proud of and impressed by (and no, while i am involved with AFA & am one of the signatories i did not write that letter ; ) – there is no expression of hatred towards cochlear implants.  In fact if we are to assess any hate, we can see it coming full throttle from the Cochlear Implant Online authors – Rachel and Elizabeth and the anti-ASL, anti-Deaf folks.  Truths hurts it seems.  And pls do read the letter – it is just, right, and good  http://audismfreeamerica.blogspot.com/2012/05/afas-letter-to-director-of.html

Falsehood #11:

“The organization promotes sign language and Deaf Culture by providing a wealth of resources supporting sign language and Deaf Culture while resources for listening and spoken language and cochlear implant are clearly lacking. ASDC fails to represent all children with hearing loss and their families.”

Fact:

ASDC does have info re: listening and spoken language in their website, their magazine Endeavor, and via their support of parents etc.  It is NOT lacking.

AG Bell Association, Cochlear Implant Online, Option schools, Oral Education, all those “foundations” that are associated with CI surgeons and companies are not just lacking in providing resources re: ASL & English they are hostile, prejudicial, and harmful in their zeal for their ONE WAY fits all.

Re: ASDC failing to represent all children – wow – they close their biased and unjust letter with a note to readers to copy and paste their letter and add a suggestion: we encourage you to suggest an alternative nonprofit to which Toys “R” Us could make a donation, a nonprofit that supports listening and spoken language, or more fully supports children with hearing loss without bias.

And if you all do not find that ending comical beyond belief – well i got some water to sell ya.  Seriously they are just wow wee OBVIOUS!

Thankfully despite Rachel and Elizabeth sending their bogus and unjust letter to Toys R Us and encouraging others to do so, Toys R Us responded to my positive note on their FB page thanking them for donating to the very worthwhile and worthy ASDC with “Hi Patti. We are very proud to support the special needs community and ASDC.” 

Hey ya never know – maybe they will want to donate to AFA too ; ) – we got some special needs to combat b.s., hatred, prejudice, audism, Oralism, ableism, etc. 

Item 2: McCaskill Matter

Remember the Gallaudet Chief Diversity Officer, Dr. Angela McCaskill, and her signing of the anti-gay marriage petition that put up LGBTQ civil rights on a ballot.  Well the petition backfired since the people of maryland voted in FAVOR of LGBTQ marriage equality as well as other states – ya hoo.  Four states reaffirmed marriage equality.

If McCaskill is thinking of suing Gallaudet as seemed to be hinted at in her unwarranted and unjust press conference – she might want to reconsider cuz appeal courts in Cinn. have sided with the University of Toledo stating it was “within its right to fire its head Human Resources administrator, Crystal Dixon, for submitting an anti-gay op-ed column to a local newspaper.” see the write up about this important case at Planet DeafQueer

See Adam Bartley long, personal, and touching Dr McCaskill letter re: her action.  I saw it a while back in Facebook in ASL and was very moved by it and here it is in English http://planet.deafqueer.com/first-person-an-open-letter-to-dr-angela-mccaskill/

Tony Perkins of the hate group, Family Research Council (FRC), used and abused video of Dr. McCaskill’s press conference to promote his anti-gay rights, homophobia and H8. Perkin’s anti-gay right’s propaganda video “Dr. Angela McCaskill Speaks Out on Bullying by Gallaudet University President” http://www.youtube.com/watch?v=4r9M_5oQ5ho Its not captioned cuz Perkins is just using McCaskill and doesnt care if she can access his hate speech and manipulation just like he used Black churches to promote the anti-gay petition.  U can turn on the auto captions but its pretty garbled “bullying” appears as “bowling” – which reminds me of how the film Bowling for Columbine reveals how fear mongering is used and abused to control the populous and we see how Tony Perkins of the anti-gay FRC tries to sell fear to no avail – all those four states he lists REAFFIRMED marriage equality (see how the SLPC has affiliated him with white Supremicist group) http://www.splcenter.org/get-informed/intelligence-files/groups/family-research-council.

Happy New Year folks – keep signing and singing those songs of freedom and 2013 is gonna be a good one.  its the 100th anniversary year that Veditz gave us his priceless Preservation of Sign Language speech and many other treasures.

Faith hope and love – we be jumping at the sun

Direct Message Ur Delegates – Prevent Language Deprivation

Summary and links below the video box

http://youtu.be/_G0ErQF7GbI

Vlog discussing the importance of direct messaging your delegates (see link for delegate manual and scroll down to p. 96-98 to find yours then hunt the internet for ways to contact them via your state association or affiliations).  Positions that have candidates are: President, Vice President, Secretary and some of the Region Representatives.  Other positions are filled with current reps continuing their term.

Another important thing to contact your delegate about is a new motion put forth by Kelby Brick, a Deaf lawyer, along with several other Deaf leaders.  See motion NAD language deprivation motion

The title is Informed Decision Making and Language Deprivation.  This motion explains that they want NAD headquarters to establish an ad-hoc committee to investigate creating state and federal legislation to prevent language deprivation.  This is very important because after a Deaf baby is born and screened there is an immediate push for Oral / Aural only via Hearing Aids/Cochlear Implants and speech/ AVT.  Forbidding of signing is becoming very common today – even some doctors prohibit parents from signing with their Deaf infant / child.  They actually make the parents sign a form committing to raising oral / aural ONLY in order to have the CI surgery.

We know from our history that “one way ONLY” is oppressive.  Oral / Aural only is inhumane and unjust.  We don’t support the excluding and banning of sign language.  The mandate to exclude a natural sign language actual violates the spirit of several new declarations by different groups such as the UN Convention on the Rights of Persons with Disabilities, The World Health Organization with the World Bank, ICED 2010 which nullified the ICED Milan 1880 Oral Only declaration and apologized for the reign of error, and the World Federation of the Deaf (see Audism Free America’s listing of these documents commitment to Natural Sign language and Deaf culture for Deaf children http://audismfreeamerica.blogspot.com/2012/05/afas-letter-to-director-of.html and the Deaf Bilingual Coalition Bilingual Bicultural petition

This is the first time in a long time that the NAD has put forth such a direct approach to address audism and Oralism (oral / aural onslaught) – probably since the early 1900s when Veditz and NAD had the various resolutions on education (see https://handeyes.wordpress.com/2010/09/05/veditz-nad-resolutions/)

Now again we see a 2nd wave of Oral / Aural ONLY where natural sign language is denied, coercion is used, fingers r wrapped, arms grabbed, ASL hidden, scolding, parents force to sign forms to not sign in order to get a CI and so forth .  To this we must say – time out and stop.  Language denial and deprivation is really a violation of human rights.  I really support that motion and thank Kelby and other leaders for making that motion.  The motion gives their rationale and they also quote from a recent article about the harms of cochlear implants by Tom Humphries et al.  Where they call for a time out and an examination of how cochlear implants can hurt children and their families by having doctors and others sell false information.  (see http://www.harmreductionjournal.com/content/9/1/16 for article).  I want to thank them for writing that article.

I am hoping NAD will do the right thing and remember that reference to the ship that needs a firm hand on the tiller to steer it in these hard times least it capsize and sink.  Continue to do nothing on this issue, status quo and false peace or pursue direct engagement and do the right thing.  I’m hopeful.  So delegates i hope you will study all the information so you know who and how to vote.

 

 

Kudos to the Cops & Not Cool, Karl

Heye all

just some songs of freedom re: the Audism Free America peaceful activism in St. Louis March 3-6, 2012.

By all accounts the cops were mighty cool while Dr. Karl White was not.

Now this is me – typing as patti at patti’s place so if u want AFA’s official position on anything mosey on over to their space (website) and Youtube (scroll down)- they got some mighty fine pow pow letters up re: the expensive  12 th International CI conference (yes 12th folks), Huff Post, NPR etc. in addition to the various videos from the St Louis activism.

knowledge and action are cool folks

so back to the Karl and the Cops in ole st. louie:

right at the very beginning when we approached one cop with an AFA card and gestured about the importance of sign language, he replied “I think everyone should learn to sign” and i was in love.  ha – it’s that easy.

In contrast when AFA met with the key players of EHDI – the system (not just the conference) – Dr. Karl White was acting like he had not been promoting the 2nd wave of Oralism when in fact he has been.  When he asked “what did I do?”  We showed him and told him – not cool, that testimony in CA in favor of the Oral / Aural supported AB 2072 and the Oral / Aural supported Indiana HB 1367 and we placed his FINISHING THE EHDI revolution manifesto in the volta review on the table.  Jig is up – we know what u have been up to and it aint neutral nor unbiased.   nc.agbell.org/document.doc?id=90 – page 8-29 in the pdf

During the St Louis peaceful activism, we did hit some moments of tension (remember peace is not the absence of tension but rather the presence of justice).  We donned our  hardiHOODS and fortitude to stand firm with LOVE so that justice and true peace could reign and it did.  Folks started to wake up and say “hmmmm why is the system so ENCOURAGING / MANDATING of ear testing, and retesting, and listening devices, and speech therapy while ASL+English is in the periphery as in way way way over there?”  hmmmm, indeed.

so below are some snapshots of how the police did the good work they are supposed to do, which is to preserve our constitutional rights of freedom of speech and assembly instead of being pawns for huge hotel chains like the Marriott and how Karl was not cool.

Cool Cops and Not Cool, Karl:

MARCH in MARCH

1. Cops were cool when folks came in from the march from City Hall (to signify laws ABOUT us without us) to Union Station and we held up our signs – many of which were from the Lies AG Bell Told My Parents campaign that DBC supplied

EAT, DRINK and BE ACTIVE

2. Cop was cool when he was unnecessarily sent over to the food court – way far far away from the EHDI conference area to surveillance Deaf&ally folks eating and congregating. AFA checked in and asked – everything alright?  Aint we allowed to eat and chat?  (noting that the conference security and the conference interpreter really had no business stalking us – we aint in conference space and the tracking and surveillance EHDI does is supposed to be of the babies not the adults – they so confused).

Cop noted this was the truth and reminded us to keep the pathways open as they already were (what else can they say) and walked away.  Oy they got played by them there crack down conference but we just smile and wave – HOWDY.

SHUT OUT OF EHDI 101

3. the cops (eventually LOTS of them got called in unnecessarily) were super cool when we went to see if we could get into the free PRE-conference EHDI 101 session which is normally open FOR the Deaf community but which Dr. Karl White and security ordered closed to us despite the Deaf presenters wishing it to be open.  They allowed us to all gather and WAIT.

Yes, we are a patient and a hopeful people.  We went to see if justice and truth would emerge – if they would allow us to go see EHDI 101 in accordance to the purpose of that session – to educate the public – most particularly the Deaf community about the basics of EHDI.  Our patience and hopes proved to be misplaced since Dr. Karl overruled the EHDI 101 presenters’ wishes and ruled against justice.  So much for inclusion and stakeholders and open society.

That was ok because: 1. the cops didnt have no problem with us standing and waiting to see see.  2. we got our 101 in how EHDI does and does NOT work mighty quick.  we See Saw – what goes up must come down – ie true stakeholders “not allowed”

During the walk from the conference area to the Marriott Hotel bar, which is in a different part of Union Station, we were stalked by the hotel security.  We checked to make sure it would be fine if we all went up to the Marriott Hotel bar which is open to the public and many of us were guests at the hotel.  She said “sure, welcome.”  So off we went.

KARL & CO. JUMPED THE GUN

4. Very disappointed that this same security person tried to get an innocent Deaf man arrested simply for being a Deaf man walking.  I kid u not folks – and this is NOT FUNNY.  i was mighty upset to see this.  Scott Manion, Sr. had went to the bathroom and upon returning to Union Station and heading up to the Marriott hotel bar was accosted by a Lieutenant and almost arrested.  His wife came and alerted us to this fact and when we went to find Scott he was being brought into the hotel bar to find out what is what.

We asked the lieutenant what’s up?  He said he was informed by the hotel security this man was harassing someone.  I looked up at Scott (he is tall and i do look up to the dude – he was super cool during this incident even though inside I’m sure he was shaken).  I asked “were you harassing anyone?”  He signed and spoke “Nobody.  I just went out off to the bathroom.”  Ruthie Jordan asked “Did anyone approach you and give you any warnings?” “Nobody,” he responded shocked and rattled.  I looked at the Lieutenant – “this is not cool” i said.

He summons the hotel security – we asked “what’s up – we are guests of this hotel and this is our friend who is visiting with us.  He is NOT bothering anyone and never got a warning”  Security goes – ahems and haws and the Lieutenant sternly says to her “I want to talk to you” and storms off cuz its not cool to falsely accuse someone of harassment cuz then u be the harasser – see see?

Busted – it is so not cool Karl and crew tried to get a nice dude like Scott arrested for nothing more than being a Big Deaf Dude with a beard and a bandana on.  NOT cool.

Lieutenant super cool for not appreciating having cops called in to Union Station for NOTHING!  Waste of time, resources, and geez they could be fighting crime instead of almost undermining the constitution.  Thank you for figuring out how quickly you were getting played and for being mad that they almost made you arrest an innocent man.  Geez that could have gone real bad real quick.  Glad you were a PEACE officer and not a hired gun (like the other folks floating all around the Marriott and more)

SO MUCH FOR INCLUSION

5. uniformed security was cool when Dr. White had slinked up to each table in the Marriott hotel bar and suggested that folks relocate to another secluded space where he got the Marriott to set up a completely separate make shift bar so he could keep the EHDI participants away from Deaf and Hearing ASL folks who  had gathered peacefully in the bar that evening.  This action on his part stole all the staff away from the Marriott bar thus closing it to us paying guests of the hotel as well as the public in the hopes that we

would GO AWAY.  But instead we stayed – Deaf time rocks!

And when i looked up up up (it really is a LOVELY bar / lobby) I saw the uniformed officer looking down on all of us – i guess Karl was worried we were gonna start pummeling his conference security person for bringing us the bad news of no booze but instead we all just said – whatever and kept chatting.

I waved and smiled at the uniformed officer and he waved back.

Aint sign language beautiful!  and Scott thank you again and again for keeping ur cool.  U r my hero.  They totally where trying to provoke us but nope we no take the bait – we cool cucumbers

Wow – look at this list and the conference hadn’t even started yet.  That was all per-conference events.  guess we will have to do a Part II for you soon.

AFA vlog covering events pre-EHDI and during the EHDI conference

Barry Sewell’s attacks on AFA

This is part of a series exposing how Barry Sewell (who goes by various aliases like oh Buckaroo, Guru Says, Berry Tadodaho, Dr. Hocokan or Hococan and The Holism, etc) has unjustly attacked various Deaf organizations based on falsehoods so you all can see his pattern.  (put key words in the PotE search box to find past entries on the subject of Barry’s other past unjust attacks.)

Organizations that he has wrongfully attacked include:
Intertribal Deaf Council, (IDC)

Deaf Bilingual Coaltion, (DBC)

California Association of the Deaf, (CAD)

National Association of the Deaf, (NAD)

and Deafhood Foundation.  (DHF)

He has done all this while simultaneously calling DVTV members crybabies, children and Deaf Trash and getting such v/blogs carried on DR and DVTV.

Note: nothing wrong with challenging organizations and individuals.  it must be based on truth, facts and justice and NOT based on falsehoods, manipulation, deception, distraction, and deceit.  If the challenging is based on b.s. then its aim and intent are destructive and not constructive.

Barry’s pattern and m.o. has been to be destructive via the spreading of falsehoods, which always back fires on him.

The Truth and Love always win so whenever he pursues such ill-endeavors, it just makes his credibility sink to an all time LOW.  How low can he go???

This entry will focus on his recent attack on Audism Free America (AFA).

We are truth seekers so every once and a while we put on our boots and rake through the muck so we can see what is to be seen.

Since knowledge is power and the truth will set us free and since i love barry and all the folks who went on the lemming leap along with him and since social justice activism shall not be unjustly and falsely attacked – we bring you the FACTS – enjoy.

(if you c/dare to comment – come from love.  this is not to be a place for bashing Barry or anyone else for that matter)

FACT 1:

Barry can not even deliver a letter truthfully.  (dont let the poker face fool ya folks)

See Barry’s bs vlog about a letter Karl White wrote to registrants of the EHDI conference in which Barry signs and CAPTIONS the vlog by stating the below

Text from Dr. Karl White’s email to EHDI registrants

Karl White “said you might hear that AFA also known as DBC will be gathering to protest what they don’t like about EHDI” This is NOT what Dr. Karl White said in his email to conference registrants.

Despite how many times Barry tries to say that AFA is the DBC reincarnated that is not gonna make it true cuz it simply is not true.

The AFA and DBC are different groups.  AFA is not ‘also known as DBC.’  My goodness and your badness – you are misrepresenting Dr. Karl White by saying he said that when he didnt.  Truth and nothing but the truth Barry.

FACT 2:

Barry AKA the Holism stated that the Deaf Community Action facebook page is an AFA thing when AFA has nothing to do with it.  Seems Barry either has VERY bad sources and leakers or is utterly confused what is what and who is who or BOTH.

FACT 3:

Barry makes a drama over some peaceful AFA protestors standing on curbs outside of two Oral / Aural only schools.

Mighty unAmerican of him to diss free speech and assembly.

Deaf and Hearing folks protest in front of schools all over the US of A – no one makes a huge stink about it EXCEPT Barry and buddies.  Hmmmm we have hit a nerve folks – similar to discussing CI – its supposed to be taboo.  We r supposed to just whistle and pretend that Oralism and Audism don’t exist anymore and that some bad practices are not still at work when in fact they are.  deceit aint sweet and denial aint a river in Egypt.  the folks who say nay to Deaf ASL folks being created equal be paddling mighty hard these days.

Deaf folks and allies have demonstrated, protested, and picketed in front of Deaf schools (St Mary’s school, Mich. School for the Deaf, Lexington School for the Deaf, Gallaudet campus near Kendal and MSSD, etc) many times many ways – why all the drama over these two? hmmmmm?   folks biases are showing big time.

and ask urself – folks who were so quick to leap and WHAM – smack into the brick wall of truth -ask –

WHO are you really aiming to PROTECT by protesting folks protesting?  1st amendment rights you no like?  hmmm?

sorry Barry we are truth seekers and we gonna STAND.  you can sit behind your keyboard and claim you’ve stockpiled stuff on your mighty hard drive as we continue to drive forward.  We be on the move and that is what is upsetting u

FACT 4:

From the AFA St Louis videos – Barry made a big stink over someone doing the “Deaf Power” solidarity gesture during the AFA march from City Hall to the EHDI conference center in St Louis

This gesture is not a BIG deal at all – it is not a symbol of militancy or extremist groups or gangster signs. It is something that folks do at protests all the TIME.  WAKE UP little darling WAKE UP.  Check out the 1968 Olympics and Tommie & Carlos peaceful protest, check out the feminist movement, check out GLBT solidarity fist, check out Deaf folks doing a solidarity fist.

So the fact of the matter IS…..the majority of Hearing folks do NOT freak out to see Deaf people do the Solidarity fist with or with out a hoot.  the majority of Hearing folks r wondering why so many of ya all are defending oppression.

Yes Barry this is what you are doing.  Every time you go after a Deaf organization UNJUSTLY and with falsehoods galore and slobbering bs labels all over them like ‘Deaf extremists’ etc etc you are saying – I prefer to be as Hearing as possible because that is the future.

Nope pal that aint the future – that is the past –

that mentality of – “we must be Hearing to function in a Hearing world” is pure crapola.  so sorry you swallowed that bad water.  Its the 21 st century and ASL and Deaf folks are all the rage.  Its handy and hot to have ASL and be Deaf.

FACT 5:

Nobody went into any hospital patient rooms or tried to watch any cochlear implant surgeries.  OY that is just pure nuttiness of you all.  Chill and breath and seek the truth – it will set you free.  All they done was visit a ENT lobby area in the hospital and leave some materials.  Folks do that every day all over America.

FACT 6:

The letters – omg Barry got played or very confused re: those letters.

The first letter Barry posted and praised as being ‘nice’ was what Dr. Karl White sent to registrants of the EHDI conference in which he forewarned them about some folks possibly exercising their first amendment rights and then he went on to engage in a bit of fear mongering – security increase etc etc.

Barry chastises the AFA for not distributing Karl’s letter for him.  Really?  Barry wants the
AFA to spread Dr. White’s propaganda  for him?  Nah.  that seems to be Barry’s self-appointed job. Not AFAs.

The 2nd letter Barry posted from K. White – this letter was an email response Dr. White sent to AFA to dissuade AFA from meeting with him and the other EHDI reps.  AFA declined to cancel the meeting and met with the EHDI reps as planned to discuss AFAs 5 demands in person.

So it was not a case of AFA folks inability to read and comprehend Karl’s writing nor is it a case of AFA being malicious.  Instead it is a case of AFA being TRUE to the truth.  AFA does not honor falsehoods.  It stands for and by the truth.

Barry has done this before ya know – with IDC, he wrote to the D of J claiming wrong doings on their part but the DoJ said – all is well.  Barry tried to get folks to file a complaint with the D of J against CAD claiming the word ‘hard of hearing’ had been removed from the bylaws when in fact it was there eleven times.  He accused CAD of profiling when Deaf folks in Union Station in St Louis WERE profiled by EHDI folks yet Barry dont make no peep about that.  Odd, eh?

FACT 7:

AFA did meet with EHDI reps (Dr. Karl White, Dr. Al Mehl, Irene Forsman and John Eichwald) in St. Louis prior to the EHDI conference.  We did not decline to meet with them as Barry falsely and erroneously claimed.

AFA did NOT attend the actual EHDI conference because AFA does NOT invest in oppressive systems and the conference and the EHDI system (nationally and state wide) is biased in favor of a MEDICAL solution and not a holistic approach to the Deaf child and family.  If Barry and pals want to shell out hundreds of dollars to give the false appearance of progress cuz they have Deaf signing bodies walking around the conference – go for it.  That ain’t AFAs way of doing things.  (they may give you a little tag signifying “I can sign” whereas they may give the Hearing signers a tag that says “I’m bilingual” – odd, eh?  Yep folks were tagged inside and outside of the EHDI conference)  AFA chose to carry their own SIGNS cuz they be independent thinkers.

FACT 8:

EHDI, the conference and the system, will start to improve.

Prior to AFA’s visit to St Louis many many many good individuals have worked hard and long to see EHDI be more inclusive of Deaf ASL stakeholders and to give ASL+English its day in the sun along with all the oral /aural stuff to little or no avail.  AFA’s external intervention at the EHDI conference put alot of issues front and center.  It also exposed the bias, prejudices, and ignorance (and absence in the case of DoE) of some of the individuals and offices responsible for implementing parts of EHDI.  It’s a good thing.  Without AFA being out and about – there would not be the progress that is starting to unfold.

FACT 9:

EHDI 101, which is a community based presentation to educate the public about what EHDI is, has always been open to the Deaf community in the past. However, Dr. White and his conference team vetoed the presenters’ interest in remaining open to the Deaf community this past March in St Louis so AFA engaged in peaceful activism and stood in the lobby area before the staircase going down into the conference area to ask for “a room in the inn.”  But alas Dr. White said “N” “O”.

Tis a pity aint it?

So much for being welcoming and inclusive – the EHDI 101 was PRE-EHDI conference.  It was one day BEFORE the conference and it has always been free and open to the public in the past yet K. White and co closed it.  And no cries of a closed society from Barry re: this fact.  Odd, eh?

FACT 10:

No matter how many times Barry & Buddies wanna slander and libel AFA with words like EXTREMIST and MILITANT – it is NOT gonna stick because truth and love always win.  MLK Jr was labeled an extremist and militant etc. so seems AFA is in mighty fine co.  NOTE: MLK Jr embraced the title of extremist of love and i too aim to do such.

AFA is committed to a militant vigilance of which George W. Veditz called for back during the first wave of Oralism.  I’d much rather be STANDing on the side of justice than be trying to usher in a flood of inequality and lieabilities.

There is more – lots more but basically Barry – you have a pattern of attacking falsely and unjustly and ya busted. So…. ¡Ya basta!  buddy.

The only reason why i invest any time in exposing Barry’s patten of unjustly attacking just organizations like IDC, DBC, NAD, DHF, and AFA is because his b.s. has mislead many folks and gotten them to react and leap and do bad and then they regret it deeply and profoundly and his dissing our community under the pretext of trying to “help” it is just totally wrong.

We strong and we on the move.  You can catch up or stay in the past.  the option is yours.

as FDR noted – we have nothing to fear but fear itself.  and know the opposite of fear is love.

STAND and be counted folks cuz u count and its always better to light a candle than to curse the darkness.

much peace (peace is not the absence of tension but the presence of justice)

and love (as in firm with love),

Patti

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