this IMPORTANT blog entry is from Dr. Stephen Emery at TigerDeafie
Because my reply to a Facebook friend’s post was too long, it has been turned into a blog entry.
To try to paraphrase the original message: the near future is looking like this:
Genetic testing isn’t going to focus on single genes any more, but to test all 20 or so thousand genes in our body. It’s simply cheaper and more cost effective, and enables patients to choose what they want to know about their DNA.
The testing of a deafness gene can therefore be offered as part of this ‘package testing’ – done through a process called sequencing. Deafness could be in there as part of a ‘medical conditions’ test.
All this appears to be being pushed through with very little consultation with the Deaf community (nor, indeed, any community); nor do they take into account whether such a practice is ethical.
“I get a sense the battle is…
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