The “D” in Detection of EHDI

The “D” in the Detection of EHDI

lets take a wee look at this part of the EHDI system

EHDI = Early Hearing Detection and Intervention

(we already examined the “I” in EHDI recently at https://handeyes.wordpress.com/2011/12/01/ehdi-what-does-the-i-really-mean/

EHDI has been around for almost two decades now [and the newborn hearing screening even longer and oral/aural ONLY even longer] and Deaf education and Deaf equality is still pretty much in an abysmal state.

all reports in are that things are still rotten in DEafNessMARK.  meaning that detecting and tagging and tracking and altering them has not really resulted in marked gains.

Truth of the matter is despite the early detection and intervention and despite CI implantation being on the rise times 2 (as in bilateral) and mainstreaming being on the raise (over 85%) – the literacy rate and employ-ability of Deaf folks is still not great.

but i jump ahead of us – back to the Detection

this is part of the newborn hearing screening, which is the brain child of the National Institute of Health (NIH) conference in 1993 see http://www.infanthearing.org/screening/index.html [but which Marlowe says she developed back in 1983 – 27 years ago.  see bottom of this entry for more on Marlowe]

OAE = Otoacoustic Emission hearing screening is used for 0-3 years of age

This is normally done right in the hospital after the birth.  It seems pretty automatically done and I dont think it can easily be declined.

The hand held device and all the accessories and replacement parts costs a pretty penny or two.  And i dont know if the parents and/or insurance company are automatically billed for each time the test is run – we can imagine the amount of money someone is gaining per set of ears that come into this world every day all across the US of A to be tested is quite handsome cuz its about 4,000,000 births a year here.

ABR = Auditory brainstem response evaluation

This is a more indepth test for the newborns who failed the OAE or got a “referred” instead of “pass” light up on the OAE test.  The ABR is done by an audiologist and often involves SEDATION – ie drugging the infant

Info for parents about ABR http://www.infanthearing.org/audiology/appendix.html

I’d give u info about the costs and companies for OAE and ABR equipment that i saw up at the NCHAM website recently but currently that page is saying: The information on this page is in the process of being reassessed and updated. Revised OAE and ABR comparison chart coming soon.

http://www.infanthearing.org/screening/equipment.html

Now who pays for this visit to the audiologist and the testing and drugging?

Seems some of the leaders of the Newborn Hearing Screening push are actually involved in companies or have stock in co. that sell  the equipment used to DETECT the Deaf

hmmmm

(see Judith Marlowe PhD, FAAA at Natus Medical Incorporated – she was behind the UNIVERSAL Newborn Hearing Screening, is involved with AG Bell Academy and AVT.  Marlowe celebrated the Hear and Say World Wide Launch in Australia.  (Hear and Say is Dimitry Dornan’s business – Dornan is famous for having compared Deaf folks to a scourge to be cured like polio and being gleeful over the prospect of consigning Deaf folks to history.  Thanks to Shawn for introducing me to Marlowe.

so are we starting to see a pattern of how CI co, hearing aid co, speech pathology co, and all the various Say and Hear types of foundations also have COs and businesses associated with them.  Dont even get me started on the lobbying).  If you want to see Marlowe in action u can click this video link below then click the CC button and auto transcribe.  I think there are many errors – so i didnt watch it in full as some of the statements were creeping me out like Dornan’s older and recent comments do but with this one im not sure how much is the auto transcribe error and how much is Marlowe espousing her new brave world order POV

http://investor.natus.com/phoenix.zhtml?c=129675&p=irol-newsArticle_print&ID=431496&highlight=

So after its confirmed that the baby is indeed Deaf a la the Center for Disease Control and Marlowe and Cochlear Ltd and AG Bell Association’s push, what is the scope of the audiologist’s practice – ie what are the audiologist equipped to tell the parents about re: language access, rights, cognitive development, how the Deaf brain works, Deaf folks as a cultural linguistic minority, etc?  Well, according to the link below and according to what we learned from the CA. Academy of Audiology last minute ditching of AB 2072 support once ASL+English was put on the table – audiologists are NOT equipped to talk about a fully natural and accessible language for Deaf babies.  It is outside their realm of expertise and the scope of their practice so why oh why are all the specialists that the parents and babies meet to TREAT their being Deaf all folks whose expertise is to diminish being Deaf and to deny ASL+English?  HMMMMMMM

see the scope of practice

shall we speak the truth and call the  DETECTION component of EHDI for what it is?  BIASED

it is folks – there is no getting around it so best to put it on the table and if u dont believe me just check out the Missing Link video by Rachel Benedict on behalf of ASLized – its hot and soaring! http://www.youtube.com/user/aslizedvideos#p/u/1/h5ZqKMgXciU

Also its important to know that the Early Hearing Detection can and does begin before the newborn is even born.  When they say EARLY they really mean EARLY – as in before the babies are even created.

The Center for Disease Control (CDC) is very interested in genetics (see pdf re: CDC’s A Parent’s Guide to Genetics and Hearing Loss) ParentsGuide508 – it has diagrams and pix folks

So there you have it folks –  the D for Detection in EHDI

now hopefully u can see the importance in the D in Deaf cuz without it Deaf will soon read as Dead

oh and there are a million more dots to connect – all it requires is…

WAKING UP and STANDING UP

peace,

patti

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11 Comments (+add yours?)

  1. ASLElla
    Dec 05, 2011 @ 16:14:53

    Bingo! Bingo! Bingo! Another excellent dot connecting and clear evidences of the BIASES of EHDI. Can still remember when NAD and Deaf leaders (yes with some reservations) declared their support of hearing screening when it was being pushed to be everywhere. I remember they saying it would make it possible for us Deaf community to provide babies and families earlier access to ASL and culture. Seems like it’s another example of being played when we TOTALLY invest our resources on working for “changes” from the inside. We gotta invest more much more on pushing from the outside!

  2. David Ennis
    Dec 05, 2011 @ 18:33:23

    Problem with the medicalized acronym of EHDI is keeping many hearing parents with their Deaf babies in dark from learning something new about the positive view of Deaf people as a unique cultural and linguistic minority instead of disabled group. To demedicalize this acronym is to enlighten many hearing parents with their Deaf babies. For example, Detection is replaced with Discovery or a better humanized word.

  3. PopeMistress
    Dec 06, 2011 @ 10:10:36

    Noun 1. detection – the perception that something has occurred or some state exists; “early detection can often lead to a cure”
    sensing
    perception – the process of perceiving
    2. detection – the act of detecting something; catching sight of something
    espial, spotting, catching, spying
    discovery, find, uncovering – the act of discovering something
    3. detection – the detection that a signal is being received
    signal detection reception – quality or fidelity of a received broadcast
    4. detection – a police investigation to determine the perpetrator; “detection is hard on the feet”
    detecting, detective work, sleuthing
    police investigation, police work – the investigation of criminal activities.

    Seems not pretty if “early hearing discovery involvement” to me at all. Sorry I hate to express this: Bunjer on fb is right about Rachel’s video. :/

    Gosh I gotta go run now. Hugs + stay warm

  4. handeyes
    Dec 06, 2011 @ 14:05:26

    heye ella –
    i agree a multiprong approach is needed and often change within systems are just shifts in power with little yield for the folks on the ground. folks inside the system trying to change after a decade or more need us on the outside to help things along

    heye david –
    yep and true and u got me thinking of new terminology for EHDI – how does this look to you? Early Healthy Deaf Identification
    that would simply mean that the babies are tested to find out if they are Deaf or not and if they are – then they are given all the good stuff to foster ASL+English development, sense of self-worth, sense of belonging, sense of identity
    ya hoo its good to be Deaf

    i cant tell you how many parents i have met lately who told me they did NOT grieve when they learned their baby was Deaf – they were fine with it. they just wanted resources put into their hands asap so they could talk to their baby in a language their child could fully understand. if EHDI was about Early Healthy Deaf Identification that would help all the parents have that sense of acceptance and getting busy with the good stuff as well as serving the baby the best

    heye shawn –
    thanks for the definitions – yep detection and intervention are very medical / pathological approach and the H = hearing is framing the baby by what s/he can NOT do rather than accepting the baby for who s/he is Deaf Gain rocks!

    so we will see if we can help them all see the light. shouldnt be too hard since ASL is becoming the third most popular language in the US and since baby signs are so hot and since multiculaturalism is cool and since we live in a global society

    ohhh there might be one snag – the $ behind the BUSINESS of Hearing
    no worries – we have truth and justice on our side

    all we gotta do is STAND

    re: The Missing Link video – i think it has alot of good stuff in it and i think its very easy for folks to criticize but unless they have PRODUCED something as an alternative or as bigger and better – im gonna celebrate the good. Will also critically examine some of the weak spots but for now – im in my happy place because the good stuff is RISING to the surface and they no likey.

    truth and love always win – think of it always {kinda from gandhi}

    much love and peace

    patti

  5. D
    Dec 08, 2011 @ 15:21:27

    Hi PDurr,

    Can you kindly provide me the source where it says more than 85% are now mainstreamed…and I read somewhere that out of the 85%, roughly about 75 – 80% are the only deaf people in their school.

    Kindly, please?! I looked everywhere.

    D

  6. handeyes
    Dec 08, 2011 @ 15:36:54

    Dear D –

    “Today, Marschark says 86 percent of deaf students in the U.S. are in mainstreamed programs all or part of the day. In many cases, they are the only deaf or hard-of-hearing student in their school.”

    from http://www.ntid.rit.edu/news/deaf-education-new-philosophy

    re: of those how many are “solitary” Deaf folks in their mainstream settings – don’t know that figure but suspect you are in the right ball park. That is the aim after all ya know – cuz where one or more Deaf congregate, usually signing will follow and for many that is “forbidden fruit” to be suppressed at all cost… meanwhile there is Signing times and Sign Shines and Baby signs and Baby Hands etc – mass produced videos for Hearing babies and their families to learn natural sign language

    go figure!

    if u find the source of the figure re: how many Deaf kids are solitaries in the mainstream – let us know here pretty please. fair is fair ; )

    peace,
    Patti

  7. Trackback: Deafhood Discussions » The “D” in Detection of EHDI
  8. Richard Clark Eckert
    Dec 12, 2011 @ 22:22:45

    I recently was re-reading Harry Best book called THE DEAF (1914) and in that he does use the terms diagnosis (I suppose the same as detection) and intervention. He specifically doubt the ability of eugenicists (his term) to implement such a program until additional principles of eugenics are discovered. Looks like those who think they discovered such trash are trying to profit. Same kaka – different century. Thanks for postin this Patti!

  9. handeyes
    Dec 13, 2011 @ 13:16:13

    Richard – thanks for the info re: Best’s book – i’ve never read it but from ur summary – looks a bit perceptive

    we got so much to re-discover and examine

    re: the false prophecies for profit – yep same ole same ole

    re: “same kaka – different century” – well richard that looks like a GREAT title for a blog entry

    seriously u made me laugh hard at that one and if i dont laugh – i cry so thank ya
    ground swell of truth is rising and grassroots activism is on the go so we might actually see this vicious cycle break some day

    that is me aim at least

    we wont know until we try

    thanks again for the info and the chuckle

    peace

    patti

  10. D
    Jan 28, 2012 @ 20:24:49

    Hi PDurr,

    As promised…

    Applying the method of weighting described by Mitchell (2004) to data
    from the 2002–2003 Annual Survey, we estimate that at least 80% of
    schools serving deaf and hard of hearing students have three or fewer
    students with hearing loss or deafness. These schools account for
    about 40% of the deaf and hard of hearing students reported to the
    Annual Survey. Even more astounding, more than half (53%) of schools
    serving deaf and hard of hearing students have only one such student
    in that school.

    http://muse.jhu.edu/journals/american_annals_of_the_deaf/v151/151.2mitchell.html

    Marschark says 86 percent of deaf students in the U.S. are in
    mainstreamed programs all or part of the day. In many cases, they are
    the only deaf or hard-of-hearing student in their school.
    http://www.rit.edu/research/biox_story.php?id=35

    A recently published study by the National Center for Special
    Education Research (under the U.S. Department of Education) titled
    “The Secondary School Experiences and Academic Performance of Students
    With Hearing Impairments” (February 2011;
    http://ies.ed.gov/ncser/pubs/20113003/ ) shows that over 80% of Deaf
    and HH students are not doing well in the areas of reading
    comprehension, word knowledge, math, science and social studies.

    Ah….the drum continues to beat for change,

    D

  11. handeyes
    Jan 28, 2012 @ 22:06:02

    D –

    AWESOME and thank u

    hope u will blog it so its on the front page instead of comments so more folks can see it but this is very handy facts to have

    thank u so much for finding it and bringing it forth

    forward march as we beat on the drum of truth and do our subaltern rebel Deaf roar!

    peace,

    Patti

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