“a new design that is built to last a lifetime.”
More propaganda, falsehoods and lies
so we now see deceit is not so sweet
COCHLEAR co. billed their CI500 range as “a new design that is built to last a lifetime.” See this article from the Associated Press in the Chicago-Sun times but in FACT they didnt even last a few years for some folks.
’tis a pity, a shame and reckless that the Food and Drug Administration fails to list the COCHLEAR co. worldwide recall of its CI500 range implants
’tis a pity, a shame and reckless that the Food and Drug Administration fails to list last years Advanced Bionics (one of AG Bell Assoc. other Circle Alliance partners) recall last year of its Hi-Res 90K cochlear implant due to it failing hot
’tis a pity that the National Institute on Deafness and Other Communication Disorders (NIDCD), which is part of the National Institutes of Health (NIH) and which is involved in EHDI – Early Hearing Detection Intervention fails to have ANYTHING up about recalls – see http://www.nidcd.nih.gov/health/hearing/coch.asp
Don’t even get me started on the Center for Disease Control (CDC)
more government money at work????
For folks and agencies that keep saying they want to ensure parents have all the information to make informed choices – they fail in the informing area it seems.
’tis a pity that AG Bell Association and their Academy that pushes AVT / LSL – advocate, train, and certify folks in sound and speech therapy and fail to include visual acuity and signed language
’tis a pity that COCHLEAR Americas and Advanced Bionics were one of A G Bell’s Circle Alliance Partners and also financed the AG Bell Association Cochlear Implant Fellowship program but both companies have recalls and been fined for failing to follow ethics and failing produce reliable and safe devices
’tis a relief that the AG Bell Association alerted folks to the COCHLEAR recall in their recent email update. thank you AG Bell Assoc for doing that [boo – in the same update they also advertise a summit on cell regeneration – yikes]
While all the initial news about the COCHLEAR co recall was via the articles reporting on the stock plummeting, we will have to see if the regular media will begin to ask the hard questions instead of all the glowing and shinny articles about the “miracle”
1. how does one recall something that is in the head and stimulates parts of the brain
NOTE: the recall is only for the UNIMPLANTED COCHLEAR CI500 range devices
If someone has one already implanted and it is working – COCHLEAR co. says leave well enuf alone.
If someone has one already implanted and it is NOT working – COCHLEAR co. says they can get it explanted and be reimplanted with an older type of CI known as “Freedom.”
2. Why the sudden raise in CI500 range just up and quitting inside the head – that is mighty odd and signifies a significant design problem? Clearly the things are not built for life and clearly it is not so easy to determine what went wrong and what will work and won’t unless you can test it INSIDE of someone.
3. How do the 5 month old, 7 month old, 12 month old etc infants indicate to their parents that their implants are not working?
4. What happens to the infant and child that no longer has a working CI but whose parents have committed the child to being oral /aural only – what happens for the weeks and month before the explanting and reimplanting can be rescheduled – are there any provisions in place to provide the child and family with a fully natural and accessible signed language? And why isnt that already provided as CI do not work consistently, reliably, or effectively for everybody always and a fully natural and accessible signed language has proven to help not harm and has been declared to be a fundamental human right?
5. There are more questions the media should be asking like – why haven’t, we the media, done more stories about some of the deaths caused as a result of cochlear implant surgery, some of the less than rosy results, and how many folks have stopped using their cochlear implants? Why do we, the media, just cover the moment of implantation and the mapping session and the “miracle” and/or the Deaf community’s concerns about cochlear implants but almost NEVER interview a Deaf person who later rejected their cochlear implant(s) or who had an adverse experience with cochlear implants? Ya know in the spirit of “the truth and nothing but the truth” and “journalistic integrity”
curiouser and curiouser, eh?
Cochlear implants literally fail folks- sometimes they fail hot (see Advanced Bionics recall 2010 recall of their Hi-Res 90K line) and sometimes they fail cold (see COCHLEAR CI500 just stopping cold in their tracks.
And when a cochlear implant which cost on average $50,000 – $80,000 for parts, installation, and therapy etc breaks on the inside, a recall is not as easy as taking your car into the shop.
The complications, risks, and hardships of getting a working replacement are not as easy as being given a loaner or a rental car either.
When a cochlear implant dies, the options are:
leave the dead part in the head and hope no leakage, scar tissue, infection, magnet moving, skin erosion or anything like that crops up 10 – 20 – 30 years down the line
– NOTE: leaving it dead in the head also means leaving the person Deaf and for some folks that is totally not an option. There is the other ear and the brain stem but you get the point – for some folks once is enuf.
or explant the dead cochlear implant (i dont know if the term explant has made it into the printed dictionary but it is a term that is used in the medical world and it just means to take the thingy out of the body – the opposite of implant)
there are numerous dangers with explanting
of great concern is – there will be an extended period of time in which the infant and child is not getting auditory stimulation and is not getting any VISUAL stimulation in terms of LANGUAGE because they system often pushes ORAL (no signing) / AURAL (no signing) ONLY
thus leaving the child completely deprived of any language input when there is a perfectly good language being gobbled up by hearing babies and their hearing mummies and daddies all over the US – ie signed language and in the US of A that is American Sign language
Hopefully parents will know to give their Deaf children ASL no matter if they choose an implant or not but with the raise of Option Schools and Oral only education and the huge push to implant at 5 mo (against FDA recommendations) and all the big $$ behind the cochlear implant industry, the “profession” of audiology and speech pathology and all the government money spent on hearing detection and not on LANGUAGE introduction – well… we gotta do more than just hope, don’t we folks?
Also of note is how these notable agencies which influence legislation, funding, and intervention (FDA, CDC, NIH NIDCD, NCMAM, and AG Bell Association) fail to mention or make note of the FACT that four major world organizations have declared the importance of a fully natural and accessible signed language for Deaf kids. Language deprivation is NOT COOL cuz it leads to language deprivation and that is a denial of language rights and human rights.
- World Health Organization,
- United Nations – Convention on the Rights of Persons with Disabilities,
- World Federation of the Deaf,
- International Congress on the Education of the Deaf New Era and Accord for the Future Agreement 2010)
So before the systems that have been pushing oral /aural ONLYism have hidden behind the cloak of how grand and great cochlear implants are, how implanting babies before they are one will result in them being near hearing like and thus no spoken language delay, how successful listening and speaking makes a person, and how parental rights and informed choices are all the rage but we continually see this is UTTERLY false – we see how they have been pulling all the strings behind the curtain to deny children the right to a fully natural and accessible signed language and how these agencies are failing to sayiANYTHING when the magic bullet makers fail – when cochlear implant companies are sued, fined, their products spark, fail HOT, get recalled, their stock plummets, their wares are taken out of the warehouses and hospital shelves and meanwhile the parents and the kids are left with NOTHING but hollow and shallow promises. hmmm – dont seem right does it?
nice job US government – sure keep covering those ever expensive devices via medicaid and medicare (which is about to get a major hit) cuz you will still need to cover the 2nd one and the replacement and the therapy and the CART and the interpreter and the captioning and the…… and it still will not be enough – so much for your cost saving plan.
This is where someone will pop up to say stem cells, laser treatment, the new pill they are working on to which we will say – SIDE EFFECTS! Geez folks – WAKE UP!
and meanwhile – there aint really nothing wrong with being Deaf ya know.
That is the most important truth they dont want ya ever to discover. Its dandy to be Deaf and its handy to be an ASLer and if you wanna add that other jazz – talking, and singing, and dancing, and listening – im cool with that. Just dont EXCLUDE equailty of condition and dont EXCLUDE justice. (it is not just, right, good, ethical, wise, prudent, effective etc to deny a Deaf infant and child the right to a fully natural and accessible signed language)
apparently cochlear implants are not just a hot & cold failure commodity in stock but they are also in blogsite traffic. The visits to this site soared as COCHLEAR co’s stock plummeted – hmmm?
seems folks r hungry for the truth
Knowledge is power folks
(note Oralism was also declared to be a failure so i have NO idea why the system of EHDI is still pushing the labeling of a newborn as having FAILED the hearing test – the newborn and family is being FRAMED into a deficit model from the onset – they even have brochures where the hospital will X a box that says = Your baby has failed their hearing test – and send the parents home with that. RUDE beyond RUDE. especially when i have been meeting several parents who say they were FINE when they learned their baby was Deaf -they were like – “sign me up for sign language classes NOW and cool she cant hear SSHHHHHH. that means she wont hear my cuss words.” yep not everyone treats the news of baby deaf as a death sentence and not everyone plummets into despair and grief. some folks do say cool beans and ASL rocks and maybe we will do some of that other stuff too – its our option but first and foremost we gonna love up our newborn and say welcome and we love you as is and we will say it in a language s/he does not have to work for.
pssst – it is NOT the newborns, infants, children, or even adults who become deaf that are the failures – it is they system that continually portrays being Deaf as a malady, infirmity, affliction, disorder, disease (see CDC and NIH).
Many moons ago women were saddled with the falsehoods of being the “weaker sex,” African-Americans were “intellectually inferior,” gays and lesbians were “a psychological illness” when in FACT they were none of those things – they were and are fine. Society just needed an attitude adjustment.
thus far the SYSTEMS of TREATING Deaf folks have FAILED because they treat them as an illness instead of as a PEOPLE. And that is not cool ya basta with that crap already ya all. Get with the program – it is ok to be Deaf – it is just NOT ok to be oppressed.
Truth and Soul Force rock and roll and always win
STAND tall and long folks for the truth and for love.
To all the families who have been or are or will be adversely impacted by problems with cochlear implants, my heart goes out to you. To all the folks i know and love who have cochlear implants and/or have chosen them for their children – you fine no worries. We are examining the system – not your choices but rather how and what information the systems provides you with and what they DON’T provide you with and WHY.
re: the Cochlear Implant industry – somone in the previous CI thread comments said the CEOs at COCHLEAR got their bonuses before they announced the recall – not sure if that is fact or fiction but we do know from Eron and other big business greed and corporate deviance does breed alot of failure in moral reasoning skills and ’tis a pity because attached to those cochlear implants are humans and they deserve first and foremost to know – they are loved and lovely as is and to be told this in a language they can fully understand and access regardless of whether or not their cochlear implant is working.
“a new design that is built to last a lifetime.” hmmmmm