heye all –
the UK HFEB, the Stop Eugenics campaign, Edwin Black’s War Against the Weak, The Immortal life of Henrietta Lacks, Connexin 26, cochlear implants + Oralism, mainstreaming, EHDI screening and TRACKING, stem cells, People of the Eye: Deaf Ethnicity and Ancestry, the unjustified shooting of John T. Williams, etc have got me thinking alot about whether or not Deaf folks have the inalienable right to life, liberty and the pursuit of happiness and my conclusion is ….
i’m not sure? i’m not sure
As Deaf folks in the U.S. of A. and on this wee thing we call the planet EARth – i aint so sure so i thought id examine this question via a series of entries.
so this series may seem a wee bit science ficitonish but what im putting forth are truths and i KNOW how we connect the dots is gonna depend entirely on where we are standing – i.e. “our centers.” if we r of the mind that to be deaf is a bad thing then what may be coming down the pipe will be a good thing and long awaited with anticipation. if we r of the mind that to be Deaf is a GRAND thing then what may be coming down the pike will be a bad thing and long feared with an impending sense of doom.
why would i want to examine this with ya all?
i have no bloody idea except for: the truth campaign (soul force / truth force – thank u gandhi for haunting me), quest to make the invisible visible, and i got a big picture frame of mind these days (ohhh and recent PROOF that the weapons of mass destruction were fabricated and knowing over 100,000 have been killed, and billions of bucks spent, and… makes me feel all the more obligated to get TRUTHS out as much as possible cuz time is of the essence and the 2nd waves of Oralism are crashing upon these shores folks. Time to shore up)
so here we go taking the plunge:
The Right to Be… D E A F (Part I)
Do we have this right?…. this right to be D E A F?
i’m just asking cuz some days it look like we dont
Lets take a stroll and see see
Suppose i got a big ole Deaf gene – most likely i will have been contacted by someone for my little ole gene pool to get examined and documented and quantified and classified and i will have gotten some GENETIC COUNSELING
i.e. someone will have sat me down to imply or overtly state that more of me would not be a good thing. “just asking…” they might say to cover their basis. Do u really want to pass on ur “difference” (this is 2011 and not too many folks still say what they think – which is “affliction” “infirmity” “disease” or “disorder” <unless u r the National Institute of Health – NIH – then u can classify us as a communication disorder)
it happens folks
it is happening folks – get that oar of yours out of the denial river would ya?
(i know i know – waking up is hard to do but… we gotta do it so we can do do – the right thing)
it happens that Deaf folks r routed to genetic counseling and their blood is gathered and analyzed and classified. One Deaf guy i know who comes from a long line of Deaf folks says he is constantly getting contacted to “participate in a study….” (ie collect samples off of him). When i asked – “different folks contacting u? not the same office or study?” he said, “different, many too many to count.” I ask “how do they find you?” he said, “i have no idea but they find me.”
so this makes me think there is a LIST folks
that is checked off on who has been gotten and documented and who is on the wish list
and i can assure you from my study of eugenics (largely via the Nazi movement) the zest and quest to collect and quantify Deaf folks genes in the U.S. of A. is NOT to make more of us (i could be wrong – i aint always right. it could be all this “collecting and tracking” is just good ole science for the sake “knowing” and nothing more or less – however, the signs seem to indicate otherwise and the literature review seems to indicated otherwise too – folks r aiming to annihilate the Deaf gene and there is $$ in patenting genes so u can then control the market on the test and treatment there of – cha ching goes the cash register – there is money in them thar ears before they are even ears – cool? not)
i guess it would be ok if all this push for tagging the Deaf gene and wee thing that had it was to actually protect like with endangered species (catch, tag, release back in their natural habitat, protect them from being hunted down and captured, foster ways to help them reproduce to make more, etc) but actually it is often for the opposite purpose (prevention, abortion, termination, alteration, eradication, etc)
now suppose i got a big ole Deaf gene (or the cause of my being Deaf is an unknown) and suppose i want to donate my sperm (if im an XYer) or eggs (if im an XXer) cuz there is money in them thar sperm and eggs too – what am i gonna see on the fertility clinic door?
“no dogs or Deaf donate”
this is the pre-baby making road
now suppose i need help getting my eggs and my mate’s or donors sperm to meet up and get happy i.e. IVF and the fertility clinic does a little pre-wash of the little bugger=baby-to-be to see see it is “fit”
but most likely they wont even tell ya – like the Human Resources advise at the coffee shop in the “What would you do?” TV program? – the fertility folks will just deep six the “bad ones” – slip it under the table and into the reject bin of “hazardous waste” so you will never know.
(apparently its only discrimination if you actually say it – not if you do it and no one catches ya. and in the UK it is mandated by law that a clinic must toss the “defective” ones.)
now suppose i didnt need no help and bingo “i’m with child” and suppose the doctor takes an interest in my ears over my uterus & my human rights. So i get a lot of “helpful” pressure to do the amniocentesis thingy with the “babe-to-be best-interest-in-mind” – hmmm its really in THE fetus’ best interest to be terminated if its less than “perfect” hmmmmm
but supposed i hang tough and me and me partner say – Deaf fetus, cool beans?
or suppose we insist in “being surprised” cuz we dont care if we paint the room blue and the jammies r pink and the ears don’t work. it matters not to us
what is the next phase in the SYSTEMS THAT BE in communicating – we (society) dont really want ye kind (i.e. Deaf) around here no more?
Summary of Part I – nope the folks-to-b do not have the right to be Deaf