Cochlear Implants… Let’s Talk
Yes, I am about to go where many good women and men have gone before
Yes, I am about to attempt to see if we can converse about cochlear implants (the device, the industry, the surgery, the recovery, the activation, the use, the lawsuits, the impact, etc) CIVILLY
will see-see if we can do it
it is most likely impossible because there is a MIGHTY fault line that divides those in favor and those opposed
and there are a bunch of folks who sit on the fence
I am not neutral. I will not pretend to be Switzerland here but I will try to be fair.
I have always had concerns about cochlear implants – their use, abuse and proliferation. I have compassion and love for folks who have chosen CIs or parents who have chosen them for their children because I understand why they have done this and because it is not my place to judge
But it is my place and moral obligation to question and to seek out answers re: the safety of CIs – please see the Audism Free American petition re: CIs
(this petition is a just and fair one that has over 1,000 online signatures and 300 by hand signatures. Anyone who has anything to do with cochlear implants should want this independent and impartial investigation so we can have all the facts)
now there are folks who take STRONGER points of view against implanting Deaf children and say it is always wrong and bad and evil. I do not support this rhetoric
there are folks who take STRONGER points of view in favor of CIs and say NOT implanting a Deaf child is wrong and bad and evil. I do not support this rhetoric
For many many many years I took a detached policy of “to each their own” because when i expressed my concerns about the device, the practice, the system of implanting etc – the folks who have CIs took it very personally. I did not want to hurt them. I did not want to make them feel rejected and unloved so I went silent.
But then someone said – what about all the kids and folks who have been harmed by CIs – dont you care about them? Why are you valuing the feelings of the ones who like their CIs over the folks who have had horrible experiences or who will in the future.
It was then i started to examine this gag order that we have put on ourselves – on our community. This taboo topic. But still i struggled with how to broach the subject of the DEVICE and the SYSTEM and not the individuals who have it or chose it for their children – HOW to NOT make it personal?
I have watched some really good v/bloggers make sincere efforts to engage in discussion on this topic to always see it go haywire.
So i dont know if People of the Eye is the right place for this discussion but after visiting Miss kat’s mom’s blog about her daughter’s 2nd implantation and difficult response to the activation & her follow up explanation – i revisited how this is a COMMUNITY issue and we need a COMMUNAL DIALOGUE on this.
so i invite ya all to come chat
what i ask first is:
1. come from love
no name calling (cyborg, robots, idiots, retard, moron, Deafhoodized, extremist (unless an extremist of love)
u can name actions or statements but dont saddle nobody up with a label except urself
2. no bull$hit
i have ZERO tolerance for b.s. – i can smell it a mile away and i ain’t having it here. ill get my boots on and throw it right back at ya if needed or give ya the boot out the door
there is much for us to learn
4. if i have scared you away with all these rules – my bad and im sorry. I just really would love for us to come from love and talk about some of the truths re: CIs – what are our concerns, what have been our experiences, what are our questions, what we would like to see happen, what are our core value conflicts…)
Often audist systems and our own hostilities work hard to keep parents and Deaf people away from each other – id like us to thumb our nose at that systematic segregation and try a little integration here.
if folks think it is of any value – help spread the link as im way way off the grid due to being DeafRead free for a mighty long time and cuz i dont frequent CI chat rooms etc.
pick a truth any truth as u see it re: CI and put it forth firmly and lovingly and we will see where we go from there
if nothing materializes – we tried and it wasnt meant to be at this place at this time.
if u have read this far down – i thank you!