AB 2072 – an optionLESS option

AB 2072 and what it really says:

This bill now requires that after the screening and labeling and tracking of the “babe that failed the hearing test” (i.e. the Deaf baby) that the PARENTS BE REQUIRED TO GO TO AN AUDIOLOGIST for a follow up meeting.

Hmmmm? You can really require this in law?

Really?

You can proclaim and apparently legislate the virtues of “options” by MANDATING someone take their baby to an AUDIOlogist?

Kinda like in Wisconsin where you are required to have your baby’s blood tested for various “disorders” so it can be recorded in the State Dept of Hygiene (this is happening in 2010 folks) – they just expanded the law to include homebirths too – gotta get every babies’ blood registered.

In Wisc. you are only exempt if u can prove some type of religious reason for objecting to this blood taking, testing, and collecting. Hmmm how about “the–its-none-of-your-bloody-business-state-government” religion – unless I want the testing and request the testing.
Informed consent anyone?

Or maybe we can look at the HFEB – a bill that became law in the U.K. that has a big ole fat clause in it prohibiting anyone from selecting Deaf genes – only allowed to use the “normal” genes after pre-implanting screening.

Deaf genes are very hot commodities in lots of places folks. Patent on one Deaf gene – done. Deaf couples are constantly being asked if they want the embryo to be tested for deafness with the option for abortion. Genetic engineering is big.

We can ignore the fact that there is a cochlear implant surgeon in New Mexico that makes parents sign papers that they will raise their child oral / aural only and if they don’t, he won’t perform the surgery. Parents who truly want option for their kids and also want CIs have had to cross state lines to have CI surgery done in a different state where the doctors don’t have this non-option requirement.

And never mind about how CIs are now operated by remote control so that oral programs, audiologists, speech pathologists, and parents will not need to ask the Deaf child if they “are on,” they will just click the remote to activate the devices. Cuz apparently the child’s OPTIONS are unimportant here.

But I digress – back to the sunny state of CA and the proposed bill REQUIRING that parents go to AUDIOlogists whether they want to or not – ya know so they can learn about their “OPTIONS. ” (ya all should be saying WTF now – no I don’t mean Wow That’s Fabulous)

What’s the problem?
Well….
Suppose the parents don’t want to.
Let’s just suppose the parents think they still live in the U.S. of A. and they might even have a crazy and radical notion that its ok to be Deaf kinda like Feminism Is The Radical Notion That Women Are People. So suppose these enlightened parents (don’t care if they are Deaf or Hearing as folks fall all over the spectrum from audism to Deafhood regardless of their dB) and just suppose these parents are not freaked out by their offspring springing off the chart in terms of dB. Perhaps even a few of these parents are happy about it (gasp).

Can a state mandate and legislate that these parents MUST go to an AUDIOlogist under the pretense of mandating they get “neutral” information?

Neutrality ain’t real folks – look at Switzerland during WW II.

If you are looking for a place to get unbiased information on options – why an audiologist office???

Really, Seriously.

This is a hard concept to grasp? That some folks might say – its BAD ENUF that you mandate this test and charge the parents for the test and there is all this tracking stuff – Now ya gonna require me and MY BABY to go to an audiologist. SHOULDN’T T H A T be my OPTION. Shouldn’t that be MY CHOICE – MY DECISION. I didn’t have a choice over if my kid was gonna be Deaf or not but shouldnt i at least have the CHOICE of who to go see?

What’s next – a judge will order parents to make their Deaf child wear two cochlear implants all her waking hours regardless of if one is working or not? HA. Oh not funny – See the case currently before a court in Idaho. (and all the other stuff i mentioned above and all the other stuff i havent even learned about yet but is still happening)

Now im not saying audiologists = bad. I am not saying that so stop getting ready to leap and spin oh dear black kettle of unholiness.

I am simply saying – audiologists are trained to make folks hear – that is their job, their speciality, their function, their expertise, and their duty.

And I’m saying there is this little thing called KICK BACKS and there was a little Department of Justice announcement last week where Cochlear Americas had to pay $880,000 for kickbacks with physicians (i.e. doctors) and audiologists and other specialists and were jacking up the price of their CIs and making the govt foot the bill.

Oh and Advanced Bionics got hit with a $1.1 million dollar penalty for its faulty CIs that actually shocked infants and children and adults. Another lawsuit in process. These devices had been recommended by AUDiologists as one of the options for parents to consider.

Supposing parents of THE Deaf baby at moment of diagnosis say – great, cool, Deaf baby – me wanna talk to some Deaf folks, you know the people who know what it means to be Deaf in the first place. Call me crazy but just intuitively I’m being called to meet up with some Deaf folks. Why isn’t anyone requiring me to see them????

And me wanna get my hands on materials to do for the eye NATURALLY (and hands tactile if Deaf-Blind baby) what the audiologist wants to do to my babes ears ARTIFICIALLY and AGGRESSIVELY.

What am I to do if there is a LAW saying I MUST see the audiologist???

I must report to an audiologist?

I must? It’s a law???

All together folks – WTF!

Now suppose ALL me wanna make sure my baby knows is:
#1. we love her/him as s/he is
#2. Its good to be Deaf – it s a blessing
#3. Its good to live in a multicultural – multilingual world
#4. I’m glad you are here little one – lets get busy learning a language u can understand naturally and completely and let’s make sure you learn the majority culture’s language too and if a parent wants to throw in some other stuff – that is their choice.

So just as NO LAW should be passed forbidding parents from going to an audiologist etc NO LAW should be passed mandating that they do.

This is not a life threatening condition folks. In fact some people believe to be Deaf is actually a life enriching condition.

Deaf does NOT equal Death

for more TRUTHFUL information on the Stop AB 2072 campaign go to
http://www.opposeab2072.com/
To all the Oppose 2072 folks – U Rock Big Time.

READ the bill and SEE that by mandating folks to go to an audiologist they are actually REMOVING options.

http://info.sen.ca.gov/pub/09-10/bill/asm/ab_2051-2100/ab_2072_bill_20100609_amended_sen_v95.html

Folks this is REAL important stuff – “First they came for….” applies here.

Now before the naysayers get all excited and start screaming extremists and closed mindedness or shouting out about the right to be non-deaf – keep spreading myths and lies and twisting – oh how you twist – and folks are gonna keep digging and more and more parents are gonna start to question just how fair and just and good is an oral / aural only experience for my child. How is a program that excludes ASL and visual acuity (i.e. anything that comes natural to my child) really an option at all??

Where is the CHILD’s option and choice in oral / aural / AVT / CIs????

hmmmm?

odd how no one is talking about that, eh?

Peace

Patti Durr

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4 Comments (+add yours?)

  1. Dianrez
    Jun 21, 2010 @ 18:19:06

    (grimly) Attagirl, Patti.

    Although there is something to be said for including the CI option, for the reasons you mentioned I did not take it years ago and probably would not if I could do it over again, 22 years later.

    However, the CI option needs to stay, if de-emphasized as a miracle or even as a great improvement due to its inconsistent results. That is what HEARING people want and they are in the majority along with some d/Deaf jumpers-on.

    The other issues you mentioned are far graver in import than the controversy surrounding the AB2072 bill. The bill is admittedly so porous that it lets in political issues; but the actualities of the doctor forcing parents to sign a committment to AVT, asking deaf parents if they want genetic testing to make abortion an option when the baby is diagnosed as deaf, or requiring blood test results to be on file for all newborns…these have potential impact on personal rights and community moral attitudes.

    These are new issues that need to be publicly challenged before they become accepted practice.

    I’m not touching the eugenics aspect here at all. Just to say that there are much uglier spectres rearing their heads with these issues.

  2. Don G.
    Jun 21, 2010 @ 19:14:39

    EXCELLENT EXCELLENT EXCELLENT linkages of the eugenics angle and exposing of the non-options “options” of AB 2072 and its like.

    Like D-Rez says above, YOU GO, GIRL!

  3. handeyes
    Jun 22, 2010 @ 13:49:16

    HI Diane and Don
    thanks for stopping by and commenting.

    Diane – i agree there is much to uncover and truly see.

    re: Eugenics – Crying Hands: Eugenics and Deaf People in Nazi Germany is an excellent resource and a depressing one. It chronicles the path of Eugenics to the Final solution.

    In the eyes of the Nazis who got most of their truly bad ideas from the U.S. (racial marriage laws, segregation in schools, housing, swimming pools, parks, etc., lethal injections, forced sterilization, etc) and in the U.S. preceding the raise of Nazism as shown by Edwin Black’s book War Against the Weak – the eugenics movement is not confined to DNA / genetics stuff – it involves a whole array of nasty options to “undue” the errors of nature. It is social darwinism on crack.

    and it is coming up through cracks in our legislature, in our medical systems, and in our educational programs where ever it can take root. Get ready – its just the beginning.

    peace

    patti

  4. Trackback: To the Stop 2072 Folks – TU for making the invisible visible « PEOPLE OF THE EYE -…first, last, and all the time” – g. veditz 1910

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